A young girl with special needs raises her arm smiling, while 2 men and a woman stand behind her in a line mimicking her action.

Secure Their Future: How to Name a Guardian for Your Special Needs Child

Get The Legal Help You Need

Call Us Today (740) 639-5303
A young girl with special needs raises her arm smiling, while 2 men and a woman stand behind her in a line mimicking her action.

For parents of special needs children, planning for the future can be challenging. Parents must consider what will happen when their child becomes an adult and if they need ongoing care. Preparing for guardianship in advance can help guarantee your child’s well-being and secure appropriate support for handling adulthood.

According to Reese Roberts Guardianship Survey in 2014, Ohio’s Probate Courts reported a total of 47,038 adults under guardianships across the state’s 88 counties. If you haven’t yet established a guardianship or created a will, it’s important to act promptly to protect your child’s future.

Planning for your child’s future can feel overwhelming, especially when it involves big decisions like guardianship. That’s where Jarvis Law Office stands out—offering not just legal guidance but practical tools and personalized support to simplify the process. 

Key Takeaways

  • Guardianship provides legal authority for decision-making on behalf of children who cannot manage their own affairs.
  • The process of appointing a guardian can take months, requiring families to assess their child’s needs, evaluate potential guardians, and draft legal documents.
  • Choosing a guardian involves careful consideration to make sure they can fulfill the responsibilities long-term.
  • Alternatives to guardianship offer less restrictive options to help children with special needs maintain some independence while receiving support.
  • Successful guardianship transitions require detailed planning allowing for a smooth adjustment for both the child and the guardian.

What is Guardianship?

Guardianship gives someone the legal authority to make important decisions for a child who can’t make them independently. It is especially important for parents of children with special needs, as turning 18 means your child is legally considered an adult—even if they still need help managing health, finances, or daily life.

Guardianship comes in different forms, depending on the level of support your child needs. Each type serves a specific purpose based on your family’s situation and your child’s needs.

  • Full guardianship covers all major decisions, such as health and finances, making it ideal for individuals with severe disabilities or challenges.
  • Limited guardianship focuses on specific areas, like healthcare or financial management, allowing for partial independence where appropriate.
  • Emergency guardianship is a temporary solution, often approved by courts, to handle urgent situations like a sudden health crisis.

3 Steps for Appointing a Guardian for Your Special Needs Child

3 steps to appoint a guardian for your special needs child

The process of appointing a guardian to a special needs child often takes time and patience. Though timelines can vary, it can often take months to complete the process.  This time frame includes filing petitions, attending court hearings, and gathering the necessary documentation to meet legal requirements.

Step 1: Assess Your Child’s Needs

Start by thinking about the kind of support your child requires. Do they need help managing finances, healthcare, or daily living tasks? 

For instance, if your child struggles with decision-making, full guardianship might be appropriate. However, if they’re capable in some areas, limited guardianship could offer more independence while providing the necessary support.

Understanding these needs upfront helps you figure out what kind of guardianship suits your situation best.

Step 2: Evaluate Potential Guardians

Choosing the right guardian is about trust and compatibility. It’s helpful to have conversations with potential guardians to gauge their understanding of the responsibilities involved. Consider people who:

  • Know your child well.
  • Share your values and priorities.
  • Have the time and willingness to take on the role.

Step 3: Draft the Necessary Legal Documents

Once you’ve decided on a guardian, it’s time to make it official. Work with an attorney or use trusted legal resources to draft documents that reflect your decisions. These often include:

  • Guardianship petitions.
  • Letters of intent outlining your child’s needs and preferences.
  • Healthcare directives if necessary.

Factors to Consider When Choosing a Guardian

Choosing the right guardian is a deeply personal decision, requiring parents to evaluate factors such as financial stability, emotional connection, availability, proximity, and legal readiness

According to the Administrative Conference of the United States, approximately 75 percent of guardians are family members or friends,  showing how most families prioritize guardians who already share a strong bond with the individual needing support.

Financial Stability and Responsibility

A guardian must be financially stable and capable of managing your child’s financial needs. They must be able to manage the following: 

  • Budgeting Skills: Handling day-to-day expenses like medical bills or education costs.
  • Stability: They should be in a secure financial position to support additional responsibilities.

Emotional Connection with Your Child

Guardianship works best when the person has a strong bond with your child. A close family member or friend who already shares a relationship with your child may provide the emotional stability they need.

  • Understanding Your Child’s Needs: Does the potential guardian know and understand your child’s personality, strengths, and challenges?
  • Empathy and Patience: Are they compassionate and patient enough to handle the role’s demands?

Availability and Commitment

Time is just as important as love and financial resources. A guardian should be able to commit to:

  • Daily Involvement: Availability to help with education, therapy, or medical appointments.
  • Long-Term Responsibility: Can they see this role through for years, potentially decades?

Discussing these aspects with potential guardians can help clarify whether they are ready for this level of commitment.

Proximity to Your Child

Living nearby can make the transition smoother and keep continuity in your child’s routines. 

  • Where the Guardian Lives: Will your child or the guardian have to move?
  • Impact of Proximity: How will this affect their schooling, therapy, or community ties?

Legal Readiness

Some guardians may be willing but unfamiliar with the legal responsibilities. Confirm that the person is prepared to handle:

  • Legal Rights and Obligations: Signing documents, managing healthcare decisions, and meeting court requirements.

What Alternatives to Guardianship Are Available?

cupped hands carrying a paper family of 4.

For families exploring less restrictive options, there are alternatives to guardianship available. 

Supported Decision-Making

Supported decision-making allows your child to retain legal authority over their decisions while receiving guidance from trusted individuals. This option works well for those who can understand choices but need help weighing the pros and cons.

  • Example: Your child might consult a family member or friend when deciding on medical treatments or financial matters.
  • Benefits: Maintains autonomy while offering support.

Power of Attorney

If your child can make most decisions but occasionally needs help, a power of attorney (POA) is a flexible option. POAs allow your child to appoint someone to make decisions in specific areas, like healthcare and finances

This option is less restrictive than full guardianship and can be customized based on your child’s needs.

Representative Payee

For children receiving government benefits like Social Security, a representative payee can manage funds on their behalf. This guarantees that money is used appropriately for their living expenses without the need for full guardianship.

It is a useful alternative for children who can handle daily decisions, but struggle with budgeting or financial management.

Joint Bank Accounts

Setting up a joint bank account with your child provides oversight while still giving them access to their funds. This is ideal for young adults who can manage small expenses but need help tracking larger financial responsibilities.

Advanced Directives

If your child has strong preferences for healthcare decisions but struggles with communication, an advanced directive confirms that their wishes are followed. These legal documents outline:

  • Preferred treatments
  • Emergency care instructions

Combining Options

Often, families use a mix of these alternatives to provide tailored support. For example, supported decision-making can be paired with a representative payee to address both daily choices and financial oversight.

How to Prepare for a Guardianship Transition

Preparing thoroughly for a guardianship transition not only supports your child but also empowers the guardian to provide the care and stability they need.

According to the Special Needs Alliance, transition planning should begin when the child is 14 or 15 years old. Having a clear plan can make a significant difference in helping your child adjust to new routines and relationships with their guardian.

Create a Detailed Plan

Start with a written plan outlining your child’s daily routines, medical needs, and long-term goals:

  • Daily Schedule: School hours, therapy sessions, and hobbies.
  • Medical Information: Doctors, medications, allergies, and treatment history.
  • Education Goals: School plans, Individualized Education Program (IEP), or vocational training details.

Hold a Transition Meeting

Bring together the guardian, your child, and any other key people (e.g., teachers, therapists). These conversations help establish trust and clarity for everyone involved. Use this meeting to:

  • Introduce your child to the guardian’s role.
  • Answer questions about routines, responsibilities, or expectations.
  • Set communication preferences, like regular check-ins.

Gradually Introduce the Guardian

If possible, let the guardian spend time with your child before taking on full responsibility. Gradual exposure can help your child feel comfortable and secure.

  • Short visits or outings to build a connection.
  • Including the guardian in medical or school meetings to familiarize them with the process.

Review Financial Arrangements

Confirm that all financial plans are in place to support the transition, helping to avoid future confusion. This includes:

  • Transferring access to accounts if necessary.
  • Setting up systems for managing benefits or funds, like a representative payee.

Keep Open Communication

Even after the transition, regular communication is key. Schedule check-ins to:

  • Address any challenges the guardian faces.
  • Monitor how your child is adjusting.
  • Provide ongoing support to the guardian as needed.

Common Challenges and How to Overcome Them

A young boy in a light blue shirt looks down with a serious/angry expression while holding a small yellow packet

Becoming a guardian comes with its share of challenges, with 60% of guardians experiencing burnout due to the emotional and financial demands of the role, according to the Cleveland Clinic. Recognizing these potential difficulties early on can help families prepare and seek support when needed.

Emotional Resistance from Your Child

It’s common for children, especially teens, to feel upset about losing independence. To address this:

  • Acknowledge Their Feelings: Validate their emotions and explain that guardianship is meant to support them, not control them.
  • Involve Them in Decisions: Let your child have a say in who their guardian will be or what decisions the guardian can make.

Family Disagreements

Relatives may have differing opinions about who should be the guardian. Avoid conflict by:

  • Discussing Roles Early: Hold family meetings to clarify expectations and responsibilities.
  • Documenting Preferences: Use a letter of intent or other legal tools to outline your wishes.

A neutral third party, like a mediator or attorney, can help resolve disputes if necessary.

Legal Matters

The guardianship process varies by state and can feel overwhelming. Simplify it by:

  • Hiring a Professional: Work with a lawyer experienced in special needs guardianship to navigate paperwork and court proceedings.
  • Using Reliable Resources: Many organizations provide templates and guides tailored to state laws.

Financial Strain

Guardianship may involve additional expenses, such as legal fees or ongoing care costs. Plan ahead by:

  • Applying for Benefits: Programs like Supplemental Security Income (SSI) or Medicaid can help cover expenses.
  • Setting Up a Trust: A special needs trust protects your child’s assets while maintaining eligibility for benefits.

Burnout for the Guardian

Guardianship can be demanding, especially over time. To support the guardian:

  • Offer Regular Breaks: Arrange for respite care to give them time to recharge.
  • Provide Resources: Share tools like support groups, educational materials, or therapy options to help them manage stress.

Ready to Secure Your Family’s Future?

Making the right decisions for your child’s future doesn’t have to be overwhelming. With Jarvis Law Office, you’ll get personalized guidance, practical tools, and a dedicated team to help you manage every step, from guardianship to asset planning. Ready to secure peace of mind for your family? Contact us and get started today!

Client Testimonials

David Dinning

October 7, 2024

Very helpful. I would recommend them – I have used them and am very satisfied.

Competent, knowledgeable, friendly lawyers, who are willing to listen to your needs and personalize documents for your situation

Live &Learn

August 22, 2024

Great webinar with important information.

Chelsea Akers

July 19, 2024

Nicole S. and Kirsten A. have been a pleasure to work with.

Danielle W

July 19, 2024

I highly recommend Jarvis Law. They are professional, kind and very helpful.

Victoria Akers

July 19, 2024

This place is really good at what they do!

View More Reviews

Jarvis Law Videos

Crisis Planning | Jarvis Law Office

Planning for your family’s long term care | Jarvis Law Office

My family member has Alzheimer’s. What can I do? | Jarvis Law Office

Meet the Firm Jarvis Law Office – 10.25.21

family-6398107_1280-1

Have questions or want to schedule an appointment?

Professional Associations

We strive for 100% customer satisfaction. If we fell short, please tell us more so we can address your concerns.

Thank you! We need your help. Would you share your experience on one of these sites?

Contact us anytime, 24/7, to book your appointment.
ohio-memory-care-planning-lawyer-banner